🕊️ Palliative Care Aftercare

    Palliative Pain Management Aftercare Instructions

    A day-by-day recovery guide for palliative pain management: what to expect, how to care for yourself, and when to call. Free to read and print.

    Typical recovery: about 30 daysPalliative Care

    What to expect

    Communication

    • Keep an updated list of all medications and dosages
    • Designate one family contact person to communicate with the medical team
    • Share your wishes about care with your family and medical team
    • It's okay to ask questions. No question is too small.

    Palliative Pain Management recovery, day by day

    Initial Phase (Day 0-7)

    Care Plan Overview

    • Your palliative care plan has been updated
    • Pain management is the top priority. Report your pain level honestly using 0-10 scale.
    • Take medications exactly as prescribed. Contact us if they are not providing relief.
    • Your comfort and quality of life are the goals of this plan

    Pain Management

    • Take scheduled pain medications on time. Do not wait for pain to become severe.
    • Breakthrough pain medication is for pain between scheduled doses. Use it.
    • Keep a pain diary: rate pain 0-10, note what helps and what makes it worse
    • Non-medication options: positioning, heat/cold, gentle massage, relaxation techniques
    Ongoing (Week 2+)

    Comfort & Quality of Life

    • Medication adjustments are normal. Report any changes in pain to your team.
    • Focus on activities and people that bring comfort and meaning
    • Regular check-ins with your palliative care team
    • It's okay to have good days and bad days

    When to call your provider or 911

    • Sudden severe pain that is not controlled by breakthrough medication
    • Difficulty breathing that is new or worsening
    • Uncontrolled bleeding
    • Sudden change in consciousness or responsiveness
    • New inability to swallow medications
    • Contact your palliative care team for any concerning changes

    When in doubt, call your clinic. For a medical emergency, call 911.

    Recovery milestones

    1. Day 3

      Care plan established

      Initial assessment complete, medications and comfort measures in place

    2. Day 14

      Symptom review

      Check-in to assess symptom control and adjust plan

    3. Day 30

      Comprehensive review

      Full team review of care goals and comfort measures

    For clinics

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    More Palliative Care aftercare guides